Jordan's Progress!!!!

Jordan saw the Infectious Disease (ID) doctor on November 29th.  She seems really nice and listened to all my concerns.  She ordered a lot of blood work to check everything it could possibly be with Jordan always sick all the time.  I had to take Jordan down to Children’s the following day because they could not draw all the blood needed the day before.  After 6 pokes (total in 2 days) they finally got enough to test everything.  (Lesson learn, only take her to Children’s for blood work)  We should have those results at her next appointment, which is the 27th.   I hope we get the answers we need.  This poor little girl has been through way too much already.

On December 4^th, I called Dr. Frattarelli’s office and told them about her not eating and how much she threw up the day before.  I am really concerned.  Jan from the office called me back and said I can get her in to see GI right now in Southfield if I can make it.  Of course I jumped on it.  Picked Jordan up from grandma and papa’s house and headed to Southfield.  I met with Dr. Madani (Nathan seen him back in the day) He listened to everything and stated he really believes she has Reflux.  He is starting her on Prevacid.  She will get 2.5ml before breakfast and before dinner.  He says give it 2 weeks and if she's not better they want to do a scope.  I hope this works. She can’t keep going on the way she’s been going.  Fingers crossed!!!

I spoke with the ID doctor on Friday to let her know we seen GI and that they believe it’s Reflux.  She also believes all the “colds” Jordan has had is due to the Reflux as well.  She stated that Jordan’s body is working non stop to fight the Reflux, that when a virus attacks her body ignores it to continue to fight the Reflux, making her sick, and staying sick for a long time.  She said once the medicine starts to work and controls the Reflux, if Jordan is to get a virus the body will then fight the virus, because it’s not dealing with the Reflux.  That makes a lot of sense if you think about it.

We started the Prevacid Wednesday night, and finally by Saturday we noticed a HUGE change.  She was able to eat 3 meals, no gagging or throwing up.  Sunday was even better.  She ate all 3 meals.  For dinner she had 1 chicken leg, mashed potatoes and gravy and macaroni and cheese, She never gagged and kept it down.  She was even eyeballing my food like she wanted it.  I don’t want to overload her belly so we are taking it slow.  I am cautiously excited.  I hope this keeps working for her.

She is at Laura’s today. (The Sitter)  Laura text me about half hour after breakfast and said she ate 1 cup of oatmeal.  No gagging or throwing up.  Yay!!!!  I am taking this day-by-day and slowly re-introducing food she loved.  We will see what the days bring.

Her upcoming appointments are:

Speech and Swallow Evaluation: 12/14/12

ID: 12/27/12

Genetics: 01/03/13

Neuro: 01/29/13

GI: 02/21/13

She is also continuing PT and OT: Mon & Wed for 1 hour and 30 min a day and PT/OT Fridays for an hour with Tote.