Jordan could not keep any food down and was throwing up constantly for over an hour and a half. I called downtown where she had the procedure done and they advised to try just giving her juice to see how she takes to it. She seemed well for awhile, but then started coughing and gagging. I called and left a message for Dr who performed her muscle biopsy, to see what we should do for her. She called back, and after we talked for a bit, she wanted us to take Jordan to the ER to be checked out. She wanted a pair of eyes to look her over, and to make sure she wasn't dehydrated. I called Kevin, and he left from darts to go with me. We got downtown around 10pm.
They looked her over, and did a chest xray which came back clear. They believed that her throat was inflamed because of the tube that was down it during surgery. They tried to give her an IV to give her some steroids to help with the inflammation, but they could not get a line. Instead they crushed up a pill and mixed it with apple juice to get it in her system. They also gave her a breathing treatment. She finally calmed down, and fell asleep.
Wednesday 09/12/12:
They came in the room about 2:30am to tell us that they were sending us home, since her vitals were good, and because the steroids will work for a few days after as well. They got all the paperwork completed, and were taking her vitals again before discharge. Well when doing her BP it woke her up, and she had this nasty croupy cough. Doctors heard that and said we are NOT going home. They were keeping her to find out what else is going on. Nurses came in the draw blood and to give her some IV fluids. After 2 more pokes they were able to get blood, but when they were trying to get the fluids going her vein blew. Since they hit the 3 strikes your out, they said they would wait for the IV team to come in to do it, since it was not easy to find a vein. They also gave her another breathing treatment.
In the meantime they worked in admitting her. They did not have any available rooms for her, so we had to stay in the ER. They were nice enough to move us into a bigger room, to bring in a crib for her, and a bed for us. We finally got into our new ER room around 5am.
We were all able to get a little sleep. Around 7am the IV team got there, and after 1 poke and some probing. they found a vein, and started the IV fluids, while we waited for a room.
They finally moved us to a room around 3pm. It was a private room, because of her croupy cough. They like to keep kids away with croup from the other children. We assume that's why it took so long to get a room.
We weren't there long though. Doctor came in a little while later and explained that this was brought on by the tube being down her throat, and because of the low muscle tone, its harder for her to keep her airways open. He said the steroid will stay in her system for another 3 days, and since she looks hydrated, and was keeping some food and juice down he was confidant in sending her home.
We made it home around 6ish I think. Jordan ate and drank a little more and finally fell asleep. She was up a lot though in the middle of the night with this terrible cough.
It was a long couple of days, but I am glad she is doing better and that's she is home where she can be more comfortable.
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